Why is ME/CFS getting so little research funding?

In a previous blog, Evelien and I argued that ME/CFS is getting less research funding than illnesses with a comparable prevalence and disability. In this article, we will try to get a better understanding of why ME/CFS gets so little research funding. Many causes have been proposed such as stigma, lack of a biomarker, mischaracterization …

Progress is happening: an overview of positive developments in the ME/CFS community

Evelien and I recently made an overview of ongoing or planned clinical trials for ME/CFS. We concluded that there are few decent treatment trials for ME/CFS in the pipeline and that things seem to be moving much faster for other illnesses such as multiple sclerosis and schizophrenia. Because some found our articles a bit depressing, we …

A disease funding comparison: is ME/CFS getting too little?

Evelien and I recently made an overview of clinical trials for ME/CFS that are in the pipeline. Although there are some reasons to be hopeful that things will improve in the future, currently there are few decent clinical trials planned or registered for ME/CFS. You can read our overview of ME/CFS trials here. As our …

A preliminary overview of NIH grant funding for ME/CFS research in the funding year 2020.

I’ve tried to make a preliminary overview of (extramural) NIH grants for ME/CFS research for the funding year 2020. The image below provides the shortened version. The longer version is available in pdf format in the link below. It provides an overview of the grants, a link to the NIH page info, and a short …

What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

Evelien Van Den Brink and I were interested in what clinical trials are currently planned or ongoing for ME/CFS. It can take many years to conduct a clinical trial and report the results, so we wanted to know what we can expect to come out in the next years. A search of databases that register …

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